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Procysbi

Procysbi is a delayedrelease prescription medication used for the management of nephropathic cystinosis in adults and pediatric patients 1 year of age and older. This drug helps to control the amount of a certain amino acid called cystine in the cells of your body, preventing it from building up to harmful levels. The common side effects include fever, vomiting, diarrhea, and tiredness. Your doctor will always ensure that the benefits of taking Procysbi outweigh these potential side effects.

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Frequently Asked Questions

Can I eat highfat foods while taking Procysbi?
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Avoid consuming highfat meals or snacks as they can reduce the absorption of Procysbi.

Can I take Procysbi if I am pregnant or breastfeeding?
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Consult your healthcare provider before using Procysbi if you are pregnant, planning to become pregnant, or breastfeeding.

What happens if I miss a dose of Procysbi?
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If you miss a dose, take it as soon as you can. If it is close to your next dose, skip the missed dose. Do not take two doses at the same time or extra doses.

What should I avoid while taking Procysbi?
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Limit time in the sunlight. Wear protective clothing and use sunscreen. Avoid highfat meals and snacks. Limit your caffeine and alcohol intake.

Comprehensive Drug Guide

How Does Procysbi Work?

Procysbi is a cystinedepleting agent that lowers the cystine content of cells in nephropathic cystinosis patients, bringing it closer to normal levels.

What is Procysbi Used For?

FDA indications: Procysbi is indicated for the treatment of nephropathic cystinosis in adults and pediatric patients 1 year of age and older.

Offlabel uses: Though it's not usual, in rare cases it might be used for other conditions related to cystine buildup.

Common Dosages

Capsule: 25mg, 75mg

Oral granule: 75mg, 300mg

Typical Dosing

FDA Approved Indications

  • The recommended initial dose is 1 gram per meter square body area per day, to be taken in two divided doses 12 hours apart. This can later be increased by your healthcare provider.
  • The maximum daily dose is 1.95 grams per meter square body area and should not exceed 2 grams per day.

Who Shouldn't Take Procysbi?

  • People who have had an allergic reaction to cysteamine or penicillamine.
  • Women who are pregnant, planning to become pregnant, or breastfeeding should consult their healthcare providers first.

Advice From The Pharmacist

  • Always take Procysbi with fruit juice (except grapefruit juice) or water.
  • Do not crush or chew the capsules. If you have trouble swallowing the capsules whole, talk to your healthcare provider.
  • Don't skip doses as it might lead to a buildup of cystine in cells.
  • Tell your healthcare provider about all the other medications you take, including prescription and overthecounter medicines, vitamins, and herbal supplements.
  • Remember, Procysbi does not cure cystinosis. Its purpose is to manage the symptoms, so it's important to take it regularly and exactly as prescribed.

Side Effects of Procysbi

Common Side Effects

  • Taking Procysbi might cause you to have stomach pain or discomfort.
  • You might experience nausea or vomiting.
  • Headaches or dizziness could occur.
  • You could experience skin rash or itching.
  • It might cause joint pain.

Uncommon/Severe Side Effects

  • Uncommon side effects:
  • You could feel unusually weak or tired.
  • You might experience a loss of appetite.
  • Your skin and eyes might turn a yellowish color (jaundice).
  • Your breathing might become shallow or labored.
  • Rare side effects:
  • You might have seizures or convulsions.
  • You could become unusually thirsty, showcasing symptoms of diabetes.
  • Your body might develop an allergic reaction to the drug which could lead to swelling of your face, lips, tongue, or throat.
  • Severe side effects:
  • If you notice darkcolored urine or lightcolored stools, seek immediate medical attention.
  • If you experience acute abdominal pain, especially if it's accompanied by nausea, vomiting, or fever, get to a doctor immediately.
  • If your skin or the whites of your eyes turn yellow, rush to get medical help.
  • Symptoms like rash, itching, severe dizziness, or trouble breathing could indicate a serious allergic reaction and need immediate medical help.

Risks and Warnings of Procysbi

  • Procysbi may increase the risk of skin, bone, and joint infections. It's important to maintain regular hygiene.
  • If you're on Procysbi treatment, avoid exposure to sunlight and use sunscreen while outdoors.
  • Patients with cystinosis are usually low on folic acid, which could lead to anemia. Your healthcare provider will monitor your blood count regularly and may suggest dietary supplements as necessary.

Interactions with Procysbi

Common Drug Interactions

  • Antiepileptic drugs (such as phenytoin, carbamazepine)
  • Medicines that can affect your liver or blood count.
  • Proton pump inhibitors (such as omeprazole, lansoprazole)

Alternatives to Procysbi

  • Cystagon (Cysteamine Bitartrate)
NiHowdy

The NiHowdy prescription discount program is NOT insurance. It is also not a Medicare prescription drug plan. The range of prescription discounts provided under this discount program will vary depending on the prescription and Pharmacy where the prescription is purchased and can be up to $95 off the retail price. You are fully responsible for paying your prescriptions at the Pharmacy at the time of service, but you will be entitled to receive a discount from the Pharmacy in accordance with the specific pre-negotiated discounted rate schedule. Glic Health LLC is the Administrator of the NiHowdy prescription discount program with its office located at One Marina Park Drive, Suite 1410, Boston MA 02210. Toll Free at (844) 944-4542 and email at support@glichealth.com. For additional information, including an up-to-date list of Pharmacies and covered drugs, or assistance with any problems related to this prescription drug discount plan, please contact our member support line toll free at (800) 999-3053 or visit nihowdy.com. By using the NiHowdy prescription discount program or app, you agree to the NiHowdy Terms and Conditions found at nihowdy.com/terms. Glic Health LLC is only the administrator of the underlying prescription discount program and is not involved with the Bitcoin, cryptocurrency or other incentives offered by NiHowdy. Glic Health LLC makes no representations whatsoever with respect to any incentives paid to the user by NiHowdy, including, without limitation, whether any cryptocurrency received as a result of using the discount program has any current value or whether it can or will appreciate in value in the future.

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